No News Is Good News

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So I haven’t posted anything here in a while, mainly because there has not been any news – kind of a ‘no news is good news’ thing.  My wound is still leaking fluids but not as much as when they re-opened my wound.  The packing they stuff into my wound has been coming out more bloody than the fluid that is leaking and that is a good thing and there is no sign of infection.  It still is not totally healed though and that is distressing.  I have spoken with all the other transplant recipients from our paired exchange and I am the only one they had to re-open, everyone else is totally closed up at this point.  I have a visiting nurse that comes by twice a week to change my bandage and re-pack the wound.  They also re-pack and change the bandage at my weekly clinic visits at Yale.  The other days of the week Meg changes the bandage and re-packs the wound.

This week at my clinic visit I had an appointment with my surgeon that did my transplant.  He looked at my wound and probed it and didn’t find any signs of infection although it is still leaking fluids, but only a little.  He is very happy with my Kidney function and with how my recovery is going.  He is pleased that I am walking at the gym again and amazed that I am up to 2-3 miles per day of walking.  He did say that I still can’t lift any weights yet and he told me it might not be until June that I am cleared for weights.  I did tell him I am doing some minor yard work, mainly brush clearing.  He said that is OK but not to lift anything heavy or to do too much work at once.  He also told me that my shortness of breath is due to an Iron deficiency and how to fix it thru diet and/or vitamins.  I also met with my endocrinologist this week about my diabetes and he made some minor changes to my insulin regimen.  Overall he is happy but after I take my prednisone in the morning my blood sugar spikes so he has made my lunch dose higher and my overnight dose smaller since I have been low in the morning.

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Wedding plans are proceeding.  We are now under 60 days until the wedding and the invitations have been mailed and every day we are getting responses back.  Plans are going well and we are getting excited for the weekend.  We go to Providence next Saturday for another dress fitting and then Meg and I will run some errands in Providence after the fitting.  We are also going thru organizing seating, programs, place cards, menu cards, and all the other details to make this event happen.  Plans are also underway for Kate’s bridal shower which will be in the beginning of June but other than Meg and Carolyn attending it we don’t have any thing to do with the shower.

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Carolyn just returned to Spain after her week trip to Morocco.  We hope to Skype with her tonight to find out how she liked Morocco and what she did while there.  I did see a picture a friend of hers took of her mounting and riding a camel!  I told her before she went that if they go to Casablanca she has to go to ‘Ricks Cafe American’ – she had no idea of what I was talking about, so I must have failed as a father. She has about one month left in Spain and while we can’t wait to get her back, she probably has misgivings about coming home as she is having a great time and her parents are pretty boring by comparison.

Re-Opening and Other News

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My wound from the transplant has been leaking a considerable amount after they took out the final two staples.  I spoke to the doctor last week about it and he brought in a surgeon to re-open my wound and check it out.   He broke thru a barrier and a flood of fluid came out.  So now I am having to have a visiting nurse and/or Meg pack my wound with gauze every day until all the fluids are dried up and not leaking anymore.  The picture above is my wound and where the hole is was where the main gush of fluids came out and where we are having to pack the gauze in.  The good news is that they have not seen any signs of infection in the  wound either on the surface or down in the wound itself.  It does hurt a little bit now which it hasn’t done since about two weeks post transplant.  I had been walking about 40 minutes per day at the Mall, but now I have had to cut that down due to the pain in my wound.  Next Monday I go back to Yale (again) to see my nephrologist and a surgeon to check my wound.  Last week they also removed the stent that was in my ureter.  It was a very humiliating experience although thankfully it was over very quickly and fairly painlessly.

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I have finally, despite the pain in my wound, returned to the gym today to exercise.  I only was able to do around 35 minutes on the treadmill at a much lower pace than prior to the transplant but I still take this as a good sign.  While I have enjoyed walking the mall with Meg it did not have the same intensity as the gym.   I only did the treadmill, no weights yet, but I am planning on meeting with a trainer and explaining my situation and getting advice on which weights to use and which to avoid so I don’t do any damage to my new kidney.  When it gets warmer I hope to walk outside as well as at the gym and also plan to ride my bike after my wound is healed.

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In other news, Meg returned to work this week, but is going back gradually.  She worked 1/2 days on Monday and Tuesday and only like a 3/4 days on Wednesday, Thursday, and Friday.  Next week she is on spring break and then she will return full-time.  I started driving again this week and am enjoying having some independence and freedom.  Wedding plans are proceeding well.  We got all the invitations stuffed, addressed and sealed with wax and they are now in the mail – so I uses we have to go thru with this event.  Kate finalized the florist, the baker for the Wedding Cake, and I contracted with a limousine company and a lighting company so things are falling into place for the big event.  Carolyn returned  from her trip thru Northern Europe and is back in class in Granada.  She had a great time and is now preparing for her next trip to Morocco next week.   We also just changed her return flight back to the US and she will get home on the Sunday of the Memorial Day weekend – can’t wait.