So Christmas has come and gone and I am approaching the one year mark since working. While I certainly miss working and adjusting to life on disability pay has been challenging, going on disability was the correct decision. I still stay in contact with people from work and am able to attend the odd event now and then so I can keep some contact with volunteers I’ve worked with for years. I still hope to get the transplant done in the coming year and after recovery hope to return to the BSA – somewhere.
This past year has not been a total waste of time, several great things have occurred. I have lost over 30 lbs. since I started going back to the gym! My daughters both had good years – Carolyn in adjusting and thriving at Ithaca! and Kate & Kenny got engaged!! We had a great family vacation in Rhode Island and just had a very nice Christmas once recovered from the ‘no transplant now’ decision. It should be a fairly quiet New Years celebration. Carolyn, Meg and I went into New York City yesterday as I had the day off from treatment and we visited the Metropolitan Museum, saw the lights on 5th Avenue and the tree at Rockefeller Center and then a nice dinner in Times Square.
The problem with waiting for a paired donation transplant is that their really is not anything I can do to move the process forward. This past year I had things to do – I had to lose weight, get approvals from my other doctors, and then get my blood chemistry acceptable for transplant, but now it relies on the ability to find a recipient for Meg’s kidney who has a donor whose kidney I can accept. Intellectually I know this will work but it just seems crazy to have to be beholden on others and there is nothing I can do to speed up the process.