So we are back from our week on the beach in Rhode Island! We had a great week – 3 days on the beach, kayaking on the pond, a day in Newport, a day in Watch Hill, a day in Mystic. My dializer and all the ancillary supplies made the trip and I was able to do treatments, although one day I couldn’t find the arterial vein and had to abort. I couldn’t take with me my recliner that I do treatments in so we were using a zero gravity chair. For the first hour it is fairly comfortable but by the end of 4 hours you swear you will never get in it again and can’t wait to get out of it and stand. It was challenging to get my needles in and the chair has a very narrow arm railing to rest my arm on during the treatment.
We were renting a very nice house/barn on Quonochontaug Pond and also had access to several private beaches. The house was very nicely furnished and we had a great time. The two boyfriends were able to join us for a few days in the beginning which made my daughters both happier. We kind of fell off our diet this week and ate like kings – lobsters, shrimp, clams, scallops, mussels, clam rolls, lobster rolls, stuffies, calamari, haddock, swordfish and ice cream. It was a very relaxing time and the first time we had every done anything like this, but we will be doing more in the future.
On Saturday evening around 11:30 PM Kate called and told us that Kenny had proposed that night! That was a great end to our vacation. No date or another details yet but they will be forthcoming in the future. Carolyn and Meg seem to have it all planned out already – will Kate approve? Probably not!
So things have been settling down, treatment wise, and my dialysis is going along with no major problems. I did have a major problem with the machine and we had to go thru some cartridges but that was mainly I had my needles in my arm and was directing others in how to set up the machine. I have set up my machine countless times but explaining it to someone else is a different matter. Take one step out of order and I can ruin the cartridges that clean my blood and that was what happened. I told Meg to do a step out of order and we had to re-set up everything. We eventually got going but it was delayed like an hour and a half.
Nothing else much is happening this week. Meg is counting the days until school is out – I think we are down to 3 days left. I am counting the days until our family vacation – that is at 8 days. This week Carolyn took a trip to Washington DC to see her college room-mate perform at the Smithsonian. She is also staying my sister Carol who lives in Alexandria, VA and works in DC. We were very nervous about her driving to DC – not about her driving but all the other idiots on the road – but the only way to learn is to do it in small trips like this. With everything that was happening in May I kind of got out of my habit of going to the gym every day. This month I have been pretty good although I have augmented my trips to the gym with some walks at the beach during nice days.
I have also been having some challenges with my thyroid and having some pain in swallowing. A month ago I had a biopsy and it was negative but they can’t tell me why my thyroid is enlarged. A month ago it wasn’t bothering me but now it is. I have a doctors visit coming up the first week of July but I may have to move that up to before vacation because it is interfering with my sleep and could lead to inference with my dialysis. Other than that I am trying to plot out our vacation and what we will try to do each day and who is going to be there each day with us as Meg now has several trips back to CT that week for our rector search at church. I do have a regular check in with my nephrologist next week before vacation.
So with the start of June comes the countdown until School Ending (Meg can’t wait) and our family vacation! Meg gets out of school a couple of days before our vacation but she is intent on school ending and the end of her year with this same student. Our family vacations for as long as I can remember have been trips to West Virginia to see Meg’s mother and family and while these were great it has left us with what can we do now syndrome. It is complicated by my dialysis treatments and our need to take my dialysis on the road. While I chose this form of dialysis because it is portable, that doesn’t translate to being easily transportable. My machine weighs about 90 lbs. just by itself. The ancillary supplies also weigh a lot and I must take enough for like 5-6 treatments while we are away. One of the blogs that I follow is Dialysis from the sharp end of the needle – and its author who is also on home hemo-dialysis, went on a rafting trip on the Colorado River with his dialyzer. Last year when we went to WV for the week we had some of the supplies shipped directly to Charleston, but this year we will need to take everything with us.
We are renting a beach house in Westerly, Rhode Island for the last week of June. The house is in walking distance of a beach and includes beach passes and parking passes at the beach. We are hoping to spend a day of two on the beach and also have some day outings – Mystic Seaport, Whale Watching and a trip to Newport. I am hoping to walk the beach each morning and dialyze while overlooking the beach in the evening. Kate and Carolyn are both coming for the week and we have invited their boyfriends who are coming for a couple of days each.
Before vacation I have some things to take care of. Today I took a blood sample to my clinic for my monthly blood sample and set up my appointment for June. I did weigh myself at the clinic today and I have lost some weight. I had an appointment last month with my cardiologist that went very well. Hopefully we are full steam ahead to have the transplant done by the end of this year. Meg is not working summer school this summer so we can both concentrate on dieting and exercise over the summer to help this process along. But not having taken a real vacation for years we are really looking forward to the end of school and our summer vacation.